Makeup And Meds

29th March Easter ?????? For those of you that know my family you know I have a large one and celebrations like Easter are a huge. This year is different. Easter….who knows what will happen this year? Today I had immunotherapy. But before that I had a meeting with my oncologist and we spoke about how I have been feeling. The last few days have been tough…….really tough. I’ve experienced severe pain and nausea like I haven’t before. It’s been difficult for the family to see me like this. Yesterday I couldn’t wake. My head was pounding and my face was in a bucket vomiting the whole time. I was experiencing extreme pain and there was nothing the could do about it, was very hard for particularly Kane and Tahlia to watch. So Gary has changed my pain meds. Instead of taking Endone I’m going on something stronger called Ordine (liquid morphine). It should be gentler on my tummy and stronger and help with the pain. I’m also on Fentanyl patches which is a patch that I wear on my b

24th March Another short blog this week. Been a really tough week. My blog is called makeup and meds and it's perfect for this blog, because things may look good on the surface (makeup, meds, smiles, dressing up etc etc) but no one wants to see my head in a bucket vomiting everyday, no one wants to see Kane and I wake up each morning crying from bone pain at 5:30am because I can't move. No one wants to see the 20+ meds I take each day just to get through. Things may seem ok but we're just trying to get through each day as we can. This week I had my cousins wedding (which I was so pleased to attend). Have to say was an absolute highlight for me, but killed me for the week. I was so grateful to be there and see my gorgeous cousin get married. Was so grateful to be able to dress up and put makeup on, was so grateful to dance (we'll hold each other up) with my 88 yr grandfather's brother. Was so glad I got to go and stay the whole night and

Friday 15th March Yesterday I met with my oncologist for my second round of Chemotherapy and to get the results from my recent lung biopsy. The news was not what we were hoping......I am not positive for T790M and I have less pld -1 than originally thought. This means I am not a candidate for Tagrisso (which we were hoping for) and we have to see if  immunotherapy will still be as effective in the brain. What does this mean for me? - It means that I will continue with Chemotherapy and Immunotherapy as the best option for me. - I'll get an MRI on my whole body (including brain) in about 3 weeks (to see if its working in the brain since radiation and immunotherapy - I'm basically starting all over again....(12 weeks from now) - more pain from chemotherapy in cancer areas.  - May look at other EFGR treatments (should this not be effective) Have to say the information was tough to hear because I was preparing myself for coming out of this and starting to feel better, n

Sunday 11th March This week has been a t ough week...... so there is a mini blog update. I had recovery from 2 operations (lung biopsy and chemotherapy port insertion) and recovery from my 1st round of chemotherapy and immunotherapy. It was a matter of wait and see how I feel. The first couple of days were not too bad, I was awake for a lot of the day (which is good) and I didn't have my head in a bucket (vomiting). I've also start ed to eat a bit more, which is much better than the nurses and I expected. Glad to have the nausea under control with a crap load of medication.  My Dr told me that I would probably start to feel really terrible (no energy, increased pain in cancer areas, nausea, tummy pain, generally feeling shocking etc) from the chemo by the weekend.....but so far so good. The symptoms I'm feeling aren't too bad, maybe I'll get a way with it lightly 😊 #nosuchluck   Then Tuesday 6th March arrived an

Monday 26th of February After another busy week I had the house to myself so that my mum could pack for her move in a few weeks. So, I made the most of the situation and slept most of the day. I woke up at about 2:30pm.... I clearly needed it!!!!  Mum had Harper at her place and they got stuff done!!  Gorgeous Gill brought Kiara home after school and we had a bit of a catch up. Then after netball training finished beautiful Kay brought Tahlia home with a fresh batch of her world famous brownies..... Still warm and delicious!!! Also after we finally have the Internet in our rental...... NBN guys came and sorted it out today!  Also heard from Gary today and I feel better that he feels Targrisso is not a better option than chemo and immunotherapy for me at this stage, however, it's still an option for us we can use it if required.  We learned there are many different types of chemotherapy. People receive different chemotherapy based on their situation and everyone i