Sunday 11th March
This week has been a tough week...... so there is a mini blog update.
I had recovery from 2 operations (lung biopsy and chemotherapy port insertion) and recovery from my 1st round of chemotherapy and immunotherapy.
It was a matter of wait and see how I feel. The first couple of days were not too bad, I was awake for a lot of the day (which is good) and I didn't have my head in a bucket (vomiting). I've also started to eat a bit more, which is much better than the nurses and I expected. Glad to have the nausea under control with a crap load of medication.
My Dr told me that I would probably start to feel really terrible (no energy, increased pain in cancer areas, nausea, tummy pain, generally feeling shocking etc) from the chemo by the weekend.....but so far so good. The symptoms I'm feeling aren't too bad, maybe I'll get a way with it lightly 😊
#nosuchluck
Then Tuesday 6th March arrived and WOAH the pain in the cancer areas have been kicked up a few notches!!!!
Prior to this morning I've been feeling pretty good, but the moment I woke up today (at about 6am) I was in excruciating pain (feeling a lot of pain in my pelvis, ribs and spine). Kane had to try to help me get out of bed. It was tough for him to see me like this as I haven't really felt pain from the cancer in a long while. It took some time for me to be able to sit and then stand and walk (as most of the pain is in my pelvis). I knew I was going to have to start taking Endone again.
Had all my medication (including Endone) and went back to bed. The nurses called to check on my progress and were happy I wasn't vomiting and said that the pain I am feeling is from the radiation and that I need to keep on top of pain medications to manage it effectively.
Wednesday 7th March
Girls had school photos today. Luckily I woke up being able to manage the pain, and was able to do their hair and go back to sleep.
Thursday 8th March
Pain has returned with a vengeance!!!
This time Mum had to help me sit up and walk around (it's tough for her to see me feeling pain, especially since I've been doing so well).
Even though I've got intense pain, I really wanted to get out of the house. So I went with Mum to Southland. I was nervous as I haven't been able to walk anywhere without the fear of falling, so I used a trolley as a walking aide and it helped heaps.
We were only gone for about 1- 1.5 hours, but I felt good for getting out of the house.
Spent the afternoon in bed.
This week has been really tough. It's the first week where I have felt increased symptoms and PAIN!
Symptoms
- My symptoms particularly at night are through the roof!!! Pain in my ears and head (from noise) is unbearable and talking is exhausting. I need to physically take some time out and think about my rest and recovery. At the moment, in the afternoon and evening I can not handle noise at all, noise actually hurts my head. The only way I can deal with it is to have early nights....which I always try to do.
- I have heightened pain in my pelvis, ribs, spine, cancer operation areas
- Brain fog a lot worse (can't remember or loose train of thought)
- dizziness
- sore tummy
Things have had to change at home as well:
Because my immunity is at risk (with chemotherapy and immunotherapy) we've gone back to:
- no shoes in the house
- no flowers
- no visitors, until I start to feel better. Just need to take each day as it comes and play it by ear. #justnotupforit #thenoiseistoomuch
- Also I have 3 kiddies who all go to school or kinder, so I need to be mindful of any germs/bugs they may bring home.
Big changes for the kids and Kane. I am trying to make their life as enjoyable and "normal" as possible. So proud of them being quiet, when they need to be and being extra thoughtful and considerate....#goodkids
Emotionally, it's been a tough week. I was hoping to start to feel a bit better by now, but instead have had the toughest week so far. #whoknowswhattomorrowholds
This week it's about recovery #feelingbetter and I have another treatment of Immunotherapy on Thursday afternoon. Hoping to be back on track by the end of the week for my cousins wedding on Saturday (17th March) #havetobethere #willdomybest
A couple of exciting things that happened this week was our house got demolished.....#excitingtimes #herestonewadventures 🏠
Mum got the keys to her new house
Harper went to her first ever concert. We realised it would be impossible for me to walk from the car to Rod Laver and then to get amongst the people and then be amongst the noise and crowd #Brunomars #XXIVmagic So happy she had a great night and a Daddy/daughter date with Tahlia and Kiara as well.
And I received a very special personal message from Samuel Johnson from #loveyoursistser. Thank you for organising Toni, was what I needed after a crappy week.
Here's to a better week. Here's to feeling strong and looking forward to partying at the end of the week #Happytimes
Cassy my darling! How brave you are.
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