Skip to main content

Posts

Showing posts from January, 2018

The week that was......Rye, symptoms kicking in, last day of radiation.....what now???

Saturday 20 th January WOAH!!!! Pain has kicked in!!!! The radiation pain has elevated x10. Heads about to explode and my chest and back…..WOAH!!!!!........DRUGS ASAP!!! On a better note at least, I had a better night’s sleep, in the first time in over a week I’ve slept more than 4 hrs!!! In the attempt to make the most of the good times we decided to go on a little impromptu trip away for the weekend!! Kane managed to get us a little beach house in Rye. The girls are pumped…..love a road trip! Mum came with us too! We arrived at the house and it’s ummmmmm OK! It’s trying to be a Tuscan style beach house but well isn’t! Anyway, I guess it all added to the adventure of the trip. We spent the afternoon at Rye beach and played in the sand and water. The rest of the trip was chillaxing, we ate average Thai takeaway cuisine and watched Adam Sandler movies until it was bed time! The next day Kano made us a yummy big breakky and the girls played backyard cricket and dance...

Let's do it.....first full week of radiation! Tuesday........PROGNOSIS.......NOT PROGNOSIS!

Monday 15th January So limited sleep but still woke up OK….could have had a few more hours to be honest! This morning Fleur popped around with DD and Lennon so we did our pamper session together. It was so nice to see all the kiddies sitting around with our scented candles and meditation music and stretching and breathing…they are divine! We used all our oils and treatments and were ready to start the day. Rach arrived, and it was time to go to radiation. We got there early so had a chance for a gas bag which is always nice. Then I had the treatment and it was over before you knew it. So fortunate to have so many people willing to help and wanting to help…I’m blessed! We then had a quick lunch and then it was sleepy times for me. It was exactly what I needed. I slept from 1:30- 4:30pm and woke up better for it. The girls had a great time with their cousin DD, dancing, drawing, making film clips to music. Later that evening Fleur was over with the most insanely de...

The weekend!

Saturday 13th Jan Woke up fresh and not too dizzy! Need to eat before I take my cocktail of meds which I need as my head is starting to throb! My darling Kano got me breakky in bed (as he always does) and I was able to take my concoction of meds (meds for inflammation, pain, nausea, dizziness, reflux, vomiting, constipation, relaxant, sleeping tablets, more narcotics, pain management etched etc) I need to be in a zone and concentrate because I take similar ones for lunch, dinner and just before bed each day. I felt OK after a few minutes and was ready to start my day. The day started as per the new usual..... our daily pamper session. So we all got cleaned up and started cleansing, moisturise, essential oils the works. Girls love it and it's special bonding time for us. Tomorrow I’m adding meditation music and candles 😊 Then we were off to Carpet Court and Caesarstone showrooms and decided on the finishes for our new home..... Exciting stuff. So glad we've decided to ...

Quality time

Friday 12th YAY finally get to spend some quality time with my girls!! Time with my girls these days is a little different, it's not the usually crazy mummy jumping around singing and dancing fun we're used to.... It's low key but equally as fun. We made yummy smoothie's where we all added our own ingredients.... Was delicious!!! Then we had a pamper morning (relaxing yet fun)!! We started with Lush fizzy bath bombs...... Divine!!! And then some meditation, stretching and full blown pampering. We cleansed, toned and moisturised our faces, massaged and moisturised our bodies (all natural ingredients of course). We drank lots of lime water and used special sprays and essential oils.... It was bliss and the girls want to start the day like this each morning..... I'm down with that (well maybe not school mornings 😊😊 ) Then it was time for mummy to nap.... The fatigue is a killer. It's not like feeling sleepy, it's pure exhaustion, it's the inabili...

Day 1 Full Brain Radiation!

Thursday 11th Jan YAY! Been looking forward to this day (well part of it anyway). Today I meet with Thomas Archer( our builder) to go through our house colour selection...... Probably one of the most fun things to do! I'm excited to see what our new home will look like. I'm excited to have a positive project to look forward to amongst all this madness and I want to see it built for my girls, we’re on strict time constraints. I loved the colour selection and I smashed it in record time because now I have my first radiation treatment!!! On to the not so exciting part of my day. I was getting my head in the zone but it's tough, really tough. You get robed up and placed on to the radiation machine. They fit your head very snuggly into the machine with your customed made mask, so you can't move. Then the thoughts start flooding into your mind whilst they're doing their checks and balances ensuring all’s right. All I could think about is my family. I'm not ready...

Going home!

Wednesday 10th Jan Feeling much better! Hooray they got the meds right! Last night I was telling my family that I was going to fake it so that I could get out today..... But I didn't need to. I can walk and the pain is bearable!! Met with the oncologists who were happy for me to go if I wanted to, or to stay as an inpatient..... but that would mean an additional 7weeks in hospital. I don't think so! The benefits of staying as an inpatient is that you don't have to pay for treatment and you get 24/7 care and rest when you need it. The downside is 7 weeks in hospital (as lovely as they are, I wanna be home with my family) Anyway I was able to get outta there...... Hooray!!!! They discharged me with my gazillion drugs..... WOW what a cocktail I'll be on! I was out of there by 12:30pm The moment I walked in the door I was greeted by my welcome home sign my dollies made for me and I felt better instantly! Not long after my legendary hairdresser Nik from AMOS ha...

Stuff's getting real!

Tuesday 9th Jan I woke up in my new suite. It was just a little more comfortable than the shared room, although I had a really tough night! The pain was through the roof. I'm on over 20 medications now (steroids for nausea, inflammation and pain, cancer drugs, narcotics for pain, antacids, reflux meds, nausea and vomiting tablets, bowel tablets, dizziness tablets, relaxation drugs and sleep drugs to name a few). Trying to get the balancing act of amounts that are right for me is a work in progress, and last night didn't work. The oncologists came in this morning at about 7am and discussed doubling the doses. Whatever works!!! Then the radiation oncology specialist (Dr Ian Porter) came in and discussed what was going would happen today. It was all getting real today. Because today my radiation mask was being made. So just before lunch 2 young men got me ready in a stretcher and guided me through the hospital I was to be transported in an ambulance with Kane (first time for ...

A week a go today!

So I've been meaning to write a blog for sometime now, but recent incidents have pushed me into action. This blog will be about the good and hard times of living with Stage IV lung cancer. It's not a downer but it's real.  I'm hoping to live as full a life as I can, and treat this disease as something I can manage and live my best possible life. I hope to share tales of the fun I have with my family as well as some of the struggles we face too. I've called it "Makeup and meds" because what you see is all an illusion. What you see on the outside may not be what's really going on deep within. Hope you follow me on this rollercoaster ride!!!! Fortunately for me I live in the best country in the world and have access to amazing medical treatment and medication that keeps me going, and fortunately for me I've always loved makeup and dressing up....so everyday I put on my face and start! I may look better than what's going on beneath but some...